Skip to main content

GetPreCiSe: A Transdisciplinary Research Project

Posted by on Tuesday, March 16, 2021 in Uncategorized.

The GetPreCiSe Center (Genetic Privacy and Identity in Community Settings) is an NIH Center of Excellence in Ethics Research. We founded the center based on the observation that the debate about genetic privacy and identity has been based (a) on an incomplete understanding of the influences on the actors involved in genomics research and translation and (b) on possible, rather than probable, risks.  Moreover, research has typically focused on what individuals say, effectively minimizing the role of community and social influences in shaping attitudes toward privacy. GetPreCiSe integrates a diverse group of interdisciplinary scholars and community advisors to collaborate and develop a more comprehensive understanding of these worries and the factors that influence them, to model actual risks to privacy and identity, all of  which will be used to inform policy.

Under the leadership of Jay Clayton, William R. Kenan Jr. Professor of English and director of the Curb Center for Art, Enterprise and Public Policy, Humanities students from different Departments worked on this transdisciplinary research project and published fabulous articles in ASAP/J.